Kenadie Jourdin-Bromley weighed in at a mere 2.5 pounds when she was born. Due to her extremely tiny size, the nurses nicknamed her “Thumbelina,” but the prognosis for her health was grim. The doctors warned Kenadie’s mother, Brianne Jourdin, that her daughter would likely have brain damage and probably wouldn’t survive for more than a few days. They had her baptized immediately.
Now 12, Kenadie has defied all odds. She attends a mainstream school in Kitchener, Ontario and in spite of her tininess and frailness, she loves swimming, playing hockey, and doing the types of things that every 12-year-old girl likes doing. Every day is a battle though — she has an extremely rare genetic condition called primordial dwarfism that only affects about 100 people worldwide.
Kenadie now stands at 39.5 inches and weighs as much as the average two-year-old.
Primordial dwarfism causes underdevelopment, thinness and frailness of the bones, and a high risk of suffering potentially lethal aneurysms. Kenadie faces learning difficulties, but she is thriving in her seventh grade class.
She is on average two feet shorter than girls her age.
She wears clothing designed for toddlers and an infant’s size seven shoe.
At three weeks old, Kenadie was healthy and strong enough to be taken home.
The outlook for her long-term health was still not great, and it wasn’t until she was eight months old that the doctors were finally able to diagnose her with primordial dwarfism.
At the age of one, Kenadie was barely larger than a tube of Pringles.
Unlike many other forms of dwarfism, primordial dwarfism causes all of the organs and bones of those affected to be proportionally smaller. This leads to what many describe as a “doll-like” appearance in those affected.
Kenadie poses next to her brother Tyran.
Tyran quickly outgrew his big sister and at the age of two was much larger than his four-year-old sister.
Now 10, Tyran towers over his 12-year-old sister.
The two are very close, and Tyran is fiercely protective of his “big” sister.
Although Kenadie has defied the doctors’ predictions, the reality is that she still faces an uphill battle.
Kenadie’s mother told Barcroft USA, “Most parents don’t have to imagine their kid not living past whatever age but it’s a reality for us that we will probably lose her.”
People affected by the condition seldom live past the age of 30.
Those affected by primordial dwarfism face a heightened risk of scoliosis, stroke, aneurysm, and a variety of other health complications. Kenadie continues to amaze though, and she even recently competed in a Special Olympics event.
She recently competed in the 13th annual Special Olympics for youth.
Kenadie won two ribbons in track at the Waterloo, Ontario event and proudly competed with nearly 500 other special needs children. “She doesn’t care about being different. What a great day,” her mother toldThe Record.
Brianne Jourdin is extremely proud of her daughter.
Brianne describes her daughter as “feisty, determined, and independent… It makes me so proud to see her in these activities it makes me cry.”
She’s showing no signs of slowing down.
Kenadie loves attending school, playing, and hanging out with her friends. By all means she’s extremely happy, and her mother stated to Barcroft USA, “My hope for the future for Kenadie is just that she is happy and that she finds things that make her happy and make her smile.”
Kenadie continues to inspire us with her amazing story.
For more information about the condition or to donate, visit the Walking With Giants Foundation.
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